Chapters Transcript Video LiveHer you're in? Yeah. When I first found out that I have an opportunity to do a project about PBC. Something that my mom has, I was really excited about it because it was personal to me and my family. Yeah. Yeah. Learning that I would meet other women who had the disease. I didn't really have any expectations of what it would be like because mostly I viewed this disease through my mom's limbs and she's pretty healthy. Okay. Mhm. Yeah. To hear you have an auto immune disease that there is no cure. My first reaction was like, I felt like a depth and it's like I said, telling my family they were also concerned about it and say my son, well, I really can't say it. But I was getting married. I can't say it. But I told his new mother in law that I was so happy. It's ok that he would have a father. Oh. Mhm. All collected together. Looks like quite a bit like I said, as we're gathering them up, I don't even see them, but I start getting gifts from people and like the little favorite little teaspoons. Anything with the lady but salt and pepper. Hello? Oh little garden bling everywhere. Garden bling. Yes, that's what you call it. Garden blink, Yeah, yeah. Okay. This is my grandmother right after her liver transplant the day she came home and this is my grandfather on the 40 in tractor. And so he made her this little like what he called, like a coach um to bring will her into the house outside of the car, was like this welcoming home thing that he did. He thought he was hilarious and so cute. Yeah. Yeah, he was. So, my husband now has this tractor and that's the four day and tractor that he's been fixing up. Yeah, this was Mhm. The unique thing about Brandy is that she's so young in some ways. She's lucky that she got diagnosed early because at least now she can make some adjustments in her life and try to figure out what's gonna work best for her. Yeah. Mhm. Hey, welcome. The Yeah, it's just the only way to find relief. It's like that scratching pad. I have it always in my bag and my purse. One of the worst symptoms aside from the pariah itis is the relentless fatigue. You are so tired. I'm having a conversation. I can be having a conversation with someone and I fell asleep in the in the middle of the conversation. I am just dead, dead tired at me. Mhm. Mr That's great. Okay. Yeah. Mhm. It was hard to watch Bell pulling out two forks and scratching her feet for me it made it really real and maybe it really sad at the same time. She's so like full of life. She just has like some kind of energy about her that you feel like drawn to and to think that there's somebody who just like all they want is to live and they can't like it just if you can't get the money. Mhm. Okay. 1, 3. Look at me. Mhm. Yeah. Mhm. Going on this journey has taught me that everyone's experience with this disease is different, but none are easy. Yeah. Published June 2, 2021 Created by
